Balancing Privacy, Autonomy, and Scientific Progress - Part 2

April 5, 2013Balancing Privacy, Autonomy, and Scientific Progress: Patients' Rights in the Use of Electronic Medical Records for Non-Treatment Purposes Case Western Reserve University School of LawLaw-Medicine CenterSumamry:This program will focus on the impact of the transition from paper medical files to electronic health records outside of the clinical setting. Computerization will enable researchers, public health officials, and others to obtain unprecedented amounts of data that can be used to achieve significant medical and social advances. However, a tension exists between maximizing the benefits of secondary (non-clinical) use of electronic health information (EHI) and deferring to patient preferences regarding what is done with their EHI. Secondary data use thus raises complicated questions about patient autonomy, privacy protections, and the degree to which the potential to promote the common good should supersede concerns about risks to individuals. This program will bring together a distinguished group of experts to explore these fascinating issues.Speakers:Barbara Evans, University of HoustonMalia Fullerton, University of WashingtonAnil Jain, Explorys, Inc.Sharona Hoffman, Case Western Reserve UniversityDr. David Kaelber, MetroHealthAndy Podgurski, Case Western Reserve UniversitySuzanne Rivera, Case Western Reserve UniversityMarc Rodwin, SuffolkMark Rothstein, LouisvilleNancy Staudt, USCNic Terry, Indiana